I only went on net to talk to other sufferers and THAT is proving difficult.
Anyway on with my story. It started 10 years ago with a pulmonary embolism.
At the time the docs put it down to clots being hereditary as my grandad died
of one at an early age. Now my rheumy thinks it is the first sign of the Behcets.
After that I had no symptoms for 5 years until I was pregnant. I had an abscess
in my groin. I gave birth and my symptoms came thick and fast. Ear infections,
I had five, one after the other hospitalised each time.Then came perinal abscesses
very painful and all surgically removed. Then terrible eye infections , after
that came mouth and genital ulcers by the hundred.
He instantly diagnosed me with BD ran some tests and totally changed his diagnoses
to chrons disease that was 2 years ago. I then had all tests for CD and after
them they decided I had not got that. It was then decided I see a skin specialist
who looking at the rash on my face and ulcers said he THOUGHT I had BD. He gave
me methotrixate and prednisolone the methotrixata had no affect after four months
he changed it to thalidomide that made me very ill in all sorts of ways and
side affects put me in hospital.